Why Getting a Diagnosis Matters

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Why Getting a Diagnosis Matters

Over the years as a speaker and advocate, I often have people say to me – oh I know my child is (insert condition) but I don’t see the point of getting a diagnosis. Or – I know I have (insert condition) so I don’t need a diagnosis.

Each time I hear this it takes all my effort to keep my internal voice from screaming at them – having a diagnosis matters!!

In the age of Dr. Google, we have a wealth of information at our fingertips. While it’s great to be able to educate yourself on a condition, it’s important to remember you are not a medical professional (and even if you are, you need an unbiased opinion).

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Back to School = New Round of Advocacy

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Back to School = New Round of Advocacy

Just the thought of a new school year gives me anxiety. Anxiety about the change in routine for my child. Anxiety about having to explain and fight for their needs to a new teacher. Anxiety about starting yet another round of advocating for my child.

While many parents and caregivers have some level of anxiety about a new school year, this anxiety is heightened when you have a child with disabilities.

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Why We Need to Embrace Not Fear Our Kids' Labels

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Why We Need to Embrace Not Fear Our Kids' Labels

A common fear I hear from parents and caregivers is not wanting their child to be labelled. There can be so much resistance to getting a child assessed or accepting the diagnosis due to this unnecessary fear. Yet we need to embrace not fear labels.

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