Why Getting a Diagnosis Matters

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Why Getting a Diagnosis Matters

Over the years as a speaker and advocate, I often have people say to me – oh I know my child is (insert condition) but I don’t see the point of getting a diagnosis. Or – I know I have (insert condition) so I don’t need a diagnosis.

Each time I hear this it takes all my effort to keep my internal voice from screaming at them – having a diagnosis matters!!

In the age of Dr. Google, we have a wealth of information at our fingertips. While it’s great to be able to educate yourself on a condition, it’s important to remember you are not a medical professional (and even if you are, you need an unbiased opinion).

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Why Family Can be the Most Challenging Advocacy Conversations

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Why Family Can be the Most Challenging Advocacy Conversations

Over the last month, I’ve delivered a number of workshops on How to Share Your Story and Advocate for Change. In discussions with participants about advocacy challenges a common theme has emerged – conversations with family members.

While you’d hope that family members would be non-judgemental and supportive of individuals with disabilities, sadly this isn’t always the case. They can be the harshest critics.

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How Your Parent Expertise Can Help Teachers

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How Your Parent Expertise Can Help Teachers

When my child was first diagnosed with ADHD, I was completely overwhelmed. I wasn’t sure how to help him or what resources were available. As additional diagnoses were added to the list, I decided it was time to get educated.

Simply put – I’ve become a semi-expert on my son (acknowledging he’s the true expert).

This means I often (if not always) know how to motivate and support my son more than his teachers, support staff or other family members.

Armed with all this knowledge, I encourage you to share your learnings with your child’s teachers.

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