Back to School = Back to Advocacy for Parents of Kids with Special Needs

Back to School = Back to Advocacy for Parents of Kids with Special Needs

For parents and caregivers of kids with special needs, a return to school can be fraught with emotions. It also means a new round of advocating for their child to get the support they need, in an often over taxed school system.  Here are some tips to help you get your child the support they need.

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Patient Engagement Starts with Storytelling

Patient Engagement Starts with Storytelling

Many healthcare organizations are looking for ways to include patient voices. The first step in recruiting volunteers is to use storytelling to help people understand and appreciate the various aspects of your organization. On a personal level not corporate.

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Stop Complaining and Speak Up!!

Stop Complaining and Speak Up!!

No rants allowed! We all have a role to play in contributing to positive conversations that are respectful of all opinions. Take the time to get educated and find a way to have your voice heard in a meaningful way.

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3 Active Listening Tips I've Learned as a Parent

3 Active Listening Tips I've Learned as a Parent

Active listening isn’t about waiting for a chance to speak but rather truly hearing what the other person is saying. It’s a skill that needs to be learned and fine-tuned, but can strength your relationships.

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The Power of Kindness

The Power of Kindness

While it may be a release to scream and shout, it’s the quickest way to shut down a conversation. By practicing kindness you can break down barriers, build relationships and get the results you need. Learn how to practice kindness when advocating for yourself or loved ones.

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Time to go Beyond Token Patient Engagement

Time to go Beyond Token Patient Engagement

Being a patient volunteer can be rewarding, but it can also be extremely frustrating. Especially when you feel you are filling a token seat versus being an equal partner. It’s time to go beyond token patient engagement and look at patient volunteers as valued and equal partners in transforming healthcare.

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Why Being an Empath is Exhausting (and Rewarding)

Why Being an Empath is Exhausting (and Rewarding)

It has taken me years to learn I’m an empath, and that my response to human interactions is completely normal. This new knowledge has helped me in my advocacy work. But I’ve also had to learn how not to take on the emotions of those I’m helping.

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Share Your Advocacy Skills to Help Others

Share Your Advocacy Skills to Help Others

There are many times when we can share our patient advocacy skills to help others navigate a difficult journey. By listening, helping people formulate their thoughts and being there as a sounding board, it can be the difference between struggling and feeling supported.

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What's Your Motivation for Being a Patient Advocate?

What's Your Motivation for Being a Patient Advocate?

What motivates patients to volunteer? It’s not prestige or money but the desire to either right a wrong or improve the healthcare system by seeing the world from a patient’s perspective. If we truly want to have a variety of patient voices heard, we need to do the work to ensure any barriers to participation are removed and we value their voices.

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You Don't Need to Struggle Alone

You Don't Need to Struggle Alone

As parents, we often hold back from sharing when we are struggling or feeling overwhelmed. But guess what? You aren’t alone. By opening up, you can tap into the amazing support from other parents who have been where you are and have great insights to share.

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